Introduction
Methods
Search Strategy
Database (and platform) | PsycInfo (OVID); Medline (OVID), EMBACE (OVID), CINAHL Plus (EBSCOhost); and Web of Science (Clarivate) |
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1 | (Parent* or Mother* or Father* or Caregiv* or Guardian* or Carer* or Kinship or Stepparent* or Foster parent*) |
2 | (Psychos* or schizo* or psychotic or hallucin* or paranoi* or voice hear* or psychiatric* or unusual belief* or thought disorder*) |
3 | (Parent* practices or Parent* style* or Parent* beh* or Parenting) |
4 | 1 AND 2 AND 3 |
Inclusion and Exclusion Criteria
Methodological Quality Assessment
Data Extraction and Analysis
Results
Study Characteristics
Study: authors, year, location and aim | Design | Sample description | Recruitment method | Relevant data collection | |||
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Parental mental health difficulty and verification of diagnosis | Child age | Other socio-demographical information | |||||
Quantitative (n = 9) | |||||||
1 | Sabih et al. (2023), Pakistan To examine parenting practices and differences in behavioural problems of adolescents | Cross-sectional | n = 348 families n = 173 parents with SMI (n = 66 Schizophrenia and n = 107 major depression disorder; MDD); verified by DSM-5 diagnosis Control group: n = 175 without SMI | 12–18 years | Mothers (n = 26); fathers (n = 40) with schizophrenia Age (years): M = 42.66 Ethnicity: Not stated Household composition: Dual family household (n = 348) Family status: Not stated | Psychiatric inpatient units and outpatient clinics | |
2 | Rabha et al. (2021), India To evaluate and compare parenting skills | Cross-sectional | n = 51 parents with schizophrenia; verified by DSM-IV diagnosis and their children Control group: n = 51 parents without SMI | 15–20 years | Mothers (n = 22), fathers (n = 29) with schizophrenia Age (years): M = 45.23 Ethnicity: Not stated, completed in India Household composition: Dual (n = 27), extended/joint (n = 24) Family status: Not stated | Not stated | APQ (Shelton et al., 1996)—both parent and child form |
3 | Gregg et al. (2021), UK To better understand the emotional climate of families | Cross-sectional | n = 20 parents with schizophrenia; verified by ICD-10 checklists and case note review Control group: n = 20 parents without SMI (n = 19 mothers; n = 1 father) | 3–11 years | Mothers (n = 19) fathers, n = 1) Age (years): M = 33.9 Ethnicity: White (n = 15); Black (n = 2); Chinese (n = 1); South Asian (n = 1); Mixed (n = 1) Household: composition: Dual (n = 5), single (n = 15) Family status: Not stated | Community Mental Health Teams (CMHT’s), psychosis outpatient clinics and local authority services | – The Parenting Scale (PS; Arnold et al., 1993) – The Parenting and Family Adjustment Scales (PAFAS; Sanders et al., 2014) |
4 | Shenoy et al. (2019), India To assess parenting and examine the clinical correlates of parenting | Cross-sectional, observational study | n = 50 mothers with schizophrenia; verified by DSM-IV diagnosis Control group: n = 50 mothers without a psychiatric disorder | 3–11 years | Mothers (n = 50) Age (years): M = 33.6 Ethnicity: Not stated, completed in India Household composition: Not stated Family status: Unclear, stated 18% of psychosis sample separated from partner | Psychiatric outpatient clinics | PS Revised (Rhoades & O’Leary, 2007) |
5 | Campbell et al. (2018), Australia To identify predictors of positive parenting outcomes | Two-phase design | n = 234 parents with psychosis; verified by ICD-10 diagnosis | Under 18 years | Mothers (n = 174), fathers (n = 60) Age (years): M = 37 Ethnicity: Not stated Household composition: Not stated Family status: Single (n = 113); married (n = 121) | Data from Australian national survey of psychosis (Morgan et al., 2012) | Study specific survey and Interview exploring quality of care in the last 12 months |
6 | Campbell et al. (2012), Australia To report on parental experiences | Two-phase design | n = 448 parents with psychosis; verified by ICD-10 diagnosis | Under 18 years | Mothers (n = 253); fathers (n = 195) Age (years): Mother (M = 36.94); fathers (M = 38.15) Ethnicity: not stated Household composition: Not stated Family status: Single (n = 287); married (161) | Data from Australian national survey of psychosis (Morgan et al., 2012); same as above | Study specific survey and interview-explored quality of care over last 12 months |
7 | Mowbray et al. (2002), USA To examine parenting among mothers who vary in demographic and symptoms | Cross-sectional | n = 379 mothers with SMI; n = 35 schizophrenia, n = 34 schizoaffective, n = 40 MD with psychotic features, n = 53 BD with psychotic features, n = 134 MD, n = 41 BD; verified by DSM-IV diagnosis | 4–16 years | Mothers (n = 379) Age (years): 36.2 Ethnicity: African American (n = 228); White (n = 110); Hispanic (n = 30); Other (n = 11) Household composition: Not stated Family status: Not stated | 12 CMHT’s and 3 psychiatric inpatient units | Nurturance, parental nurturance subscale of the Child Rearing Practices Report (Rickel & Biasatti, 1982) |
8 | Zemencuk et al. (1995), USA To better understand the mothers functioning and parenting style | Cross-sectional | n = 48 mothers with a diagnosis of schizophrenia (65% schizophrenia, 13% schizoaffective, 21% affective); verification of diagnosis not stated but recruited from psychiatric inpatient units | Under 13 years | Mothers (n = 48) Age (years): M = 31.4 Ethnicity: Black (n = 31), White (n = 17) Household composition: Not stated Family status: Single (n = 38), married (n = 10) | 4 Psychiatric inpatient units | STC (Stollak et al., 1973)—responses rated to 5 vignettes |
9 | Wolfenden et al. (2022), UK An evaluation of Triple P parenting intervention | Within subject ABA single case design | n = 10; n = 6 schizophrenia, n = 4, paranoid schizophrenia; verified by ICD-10 diagnosis | 3–10 years | Mothers (n = 10) Age (years): M = 32.9 Ethnicity: White British (n = 8), Black African (n = 1), Chinese (n = 1) Household composition: Single (n = 9), dual (n = 1) Family status: Single (n = 9), cohabiting (n = 1) | CMHT’s, psychosis outpatient services, local authority services | PS (Arnold, 1993) |
Study: authors, year, location and aim | Design | Sample description | Recruitment method | Relevant data collection and analysis | |||
---|---|---|---|---|---|---|---|
Parental mental health difficulty and verification of diagnosis | Child age | Other socio-demographical information | |||||
Quantitative (n = 3) | |||||||
10 | Boström and Strand (2021), Sweden To explore parent and child mental health and the parent–child relationship | Multi perspectival design | n = 6 parents with psychosis and their 7 children; verification of diagnosis not stated, but recruited from psychosis outpatient clinics | 8–15 years | Mothers (n = 4), fathers (n = 2) Age (years): M = 44.3 Ethnicity: Swedish (n = 5), other (n = 1) Household composition: Single (n = 4), dual (n = 2) Family status: Single (n = 4), co-habiting (n = 2) | 4 Psychosis outpatient clinics Parents participated in Beardslee family intervention (Beardslee et al., 2003) | Semi-structured interviews; analysed using IPA (Smith et al., 2009) |
11 | Strand et al. (2020), Sweden To explore how parents experience the effect(s) of their illness on parenting | Exploratory study | n = 15 parents with psychosis; n = 8 schizoaffective disorder, n = 2 schizophrenia, n = 3 psychotic disorder and n = 2 MDD with psychotic episodes; verification of diagnosis not stated, but recruited from psychosis outpatient clinics | 2–16 years | Mothers (n = 10), fathers (n = 5) Age (years): M = 42 Ethnicity: Not stated Household composition: Single (n = 7), dual (n = 8) Family status: Single (n = 7), co-habiting or married (n = 8) | Psychosis outpatient clinics | Semi-structured interviews; parenting was analysed using Grusec and Davidov’s (2010) model of parenting |
12 | Graham and King (2005), Australia To explore potential parental difficulties during their child’s bedtime routine | Cross-sectional, descriptive | n = 5 mothers with schizophrenia; verification not stated, but recruited via case managers at psychiatric clinic | 3–12 years | Mothers (n = 5) Age (years): M = 33.4 Ethnicity: Not stated Household composition: Not stated Family status: Single (n = 3), co-habiting or married (n = 2) | 2 CMHT’s | Semi-structured interviews; analysed using thematic analysis (Aronson, 1994) |
Research Question 1: What Are the Parenting Practices of Parents Who Experience Psychosis?
Study: authors, year | Findings | Quality appraisal | ||||
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Positive Authoritative Parenting | Permissive/Inconsistent Parenting | Authoritarian Parenting | Factors impacting on parental role/additional findings | |||
Quantitative (n = 9) | ||||||
Measure: Alabama Parenting Questionnaire (Shelton et al., 1996; n = 2); Higher scores = increased frequency of parenting style | ||||||
1 | Sabih et al. (2023) | Parents with psychosis reported significantly less positive involvement/parenting (M = − 1.48; SD = 1.46) than parents without SMI (M = 1.13; SD = 1.49) | Parents with psychosis scored significantly higher on poor monitoring/supervision (M = 0.42; SD = 1.72) compared to parents without SMI (M = − 0.33; SD = 1.67) | Parents with psychosis scored significantly higher on negative/inconsistent discipline (M = 0.8; SD = 1.97) compared to parents without SMI (M = − 0.47; SD = 1.67) | High | |
2 | Rabha et al. (2021) | Parents with psychosis reported significantly less positive involvement (M = 1.93; SD = 0.73) and positive parenting (M = 1.91; SD = 0.76) than parents without SMI (Involvement; M = 2.89; SD = 0.73); (Parenting; M = 3.30; SD = 0.74) Parents with psychosis scored highest on the subscale positive involvement followed by positive parenting when compared to the other subscales | Parents with psychosis scored significantly higher on poor monitoring/supervision (M = 1.35; SD = 0.44) and inconsistent discipline (M = 1.82; SD = 0.51) compared to parents without SMI (Monitoring/supervision; M = 0.70; SD = 0.44); (Inconsistency; M = 1.37; SD = 0.66) | No significant differences found between groups on corporal punishment (M = 1.3; SD = 0.81); Control (M = 1.13; SD = 1.23) | Moderate |
Measure: Parenting Scale (PS; Arnold et al., 1993; n = 3); Higher scores = increased frequency of parenting style and The Parenting and Family Adjustment Scale (PAFAS; Sanders et al., 2014; n = 1); Higher scores indicate more inconsistency, coercion, less positive encouragement and worse parent–child relationship | ||||||
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3 | Wolfenden et al. (2022) | PS: Not measured | PS: Baseline scores - Parental Laxness: M = 4.625, SD 1.796 | PS: Baseline scores- Parental over-reactivity: M = 3.875, SD = 1.081 Parental verbosity: M = 4.20, SD = 0.60 | PS: At baseline 8 out of 10 parents PS scores fell within the clinical range (M = 4.06, SD = 0.77) | High |
4 | Gregg et al. (2021) | PAFAS: No significant difference was found between the groups on positive encouragement (Psychosis; M = 5.55; SD = 3.35); (Control; M = 3.8; SD = 3.27) | PS: Parents with psychosis scored significantly higher on parental laxness (M = 4.50; SD = 1.63), compared to parents without SMI (M = 2.35; SD = 0.77) PAFAS: Parents with psychosis scored significantly higher on parental inconsistency (M = 8.7; SD = 2.7) compared to parents without SMI (M = 5.1; SD = 2.44) | PS: Parents with psychosis scored significantly higher on parental over-reactivity (M = 3.63; SD = 1.41) compared to parents without SMI (M = 2.54; SD = 0.70), as well as on parental verbosity (Psychosis; M = 4.56; SD = 1.02); (Control; M = 3.91; SD = 0.54) PAFAS: Parents with psychosis scored higher on poorer parent–child relationship (M = 8.35; SD = 2.51) compared to parents without SMI (M = 4.75; SD = 2.81) No significant difference was found between the groups on parental coercion (Psychosis; M = 7.65; SD = 3.82); (Control; M = 5.9; SD = 3.7) | Lower parental self-efficacy linked to over-reactivity | High |
5 | Shenoy et al. (2019) | Not measured | PS: Parents with psychosis scored significantly higher on parental laxness (M = 3.92; SD = 1.50), compared to parents without SMI (M = 2.64; SD = 1.05) | PS: No significant differences found between the groups on parental hostility (Psychosis; M = 3.10; SD = 1.59); (Control; M = 2.60; SD = 1.35) or over-reactivity (Psychosis; M = 3.18; SD = 1.05); (Control; M = 3.20; SD = 1.08) | Negative symptoms, lack of judgement/insight and difficulties recognising emotions correlated with laxness | Moderate |
Measure: Study specific survey and interview (n = 2); Rated as no dysfunction, obvious dysfunction or severe dysfunction | ||||||
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6 | Campbell et al. (2018) | 75% of parents were rated as having no dysfunction in their quality of care over the last 12 months | Not measured | Not measured | – Majority of parenting is affected by illness severity and daily functioning – Parents valued their role as parents and the majority are parenting well | High |
7 | Campbell et al. (2012) | 76.6% of parents were rated as having no dysfunction in their parenting over the past 12 months | Not measured | Not measured | 21.3% of mothers and 28.3% of fathers were rated as having obvious or severe dysfunction in their ability to care for their child | High |
Measure: The Sensitivity to Children Scale (Stollak et al., 1973; n = 1); Higher scores = higher number of responses | ||||||
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8 | Zemencuk et al. (1995) | An authoritative response was the predominant in 3/5 vignettes (1, 2 and 3) Vignettes 1–5 solutions: Authoritative (38.3%, 40.4%, 31.9%, 21.3%, 27.7%) | A neglecting response was most prevalent alongside authoritarian in vignette 4 Vignettes 1–5 solutions: Neglecting (19.1%, 19.1%, 25.5%, 25.5%, 12.8%) Indulgent (23.4%, 4.3%, 23.4%, 23.4%, 4.3%) | An authoritarian response was most prevalent in vignette 5 and authoritarian and neglectful most prevalent in vignette 4 Vignettes 1–5 solutions: Authoritarian (10.6%, 29.8%, 14.9%, 25.5%, 51.1%) Psychotic/intrusive responses were rare (from 4.3 to 8.5%) | High |
Measure: Child Rearing Practices Report (Rickel & Biasatti, 1982; n = 1); Higher scores = more nurturance | ||||||
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9 | Mowbray et al. (2002) | Among non-African Americans, mothers with schizoaffective disorder had significantly lower nurturance scores than those with MD, MD—psychotic features, or BD (Schizophrenia: M = 3.18; Schizoaffective: M = 3.46; MD with psychotic: M = 3.77; BP with Psychotic: M = 3.66; MD: M = 3.68; BP: M = 3.77) Among African Americans, mothers with schizoaffective disorder were significantly less nurturing than those with BP (Schizophrenia: M = 3.73; Schizoaffective: M = 3.57; MD with psychotic: M = 3.61; BP with Psychotic: M = 3.72; MD: M = 3.61; BP: M = 3.80) | Not measured | Not measured | For most of the parenting variables, the results suggest that African American women with a schizoaffective diagnosis and non-African American women with schizophrenia or schizoaffective diagnoses had more parenting problems than women with other diagnoses | High |
Qualitative (n = 3) | ||||||
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Study: authors, year | Main themes | Summary of main relevant findings | Quality appraisal | |||
10 | Boström and Strand (2021) | Five main themes: (1) An unclear image (2) An incoherent story (3) Illness as part of ordinary life (4) A non-hierarchical parent–child relationship (5) Attunement of the parent–child relationship and child well-being | Positive authoritarian: Parent–child relationships seemed to be mutually caring and warm Permissive/Inconsistent: – Both parents and children described their parenting as permissive, exercising little rules or controlling parenting behaviour – Children described reverse roles and taking responsibility as the parent could not always be relied upon | High | ||
11 | Strand et al. (2020) | Domains of parenting: (1) Protection (2) Reciprocity (3) Control (4) Guided learning (5) Group participation | Permissive/inconsistent parenting: Parents reported difficulties with control and described using withdrawal and avoidance to help protect their child from their mental illness Factors impacting on parenting/additional findings: – Found that all domains of parenting appeared to be affected by psychosis – Depression, fatigue, and difficulty focusing because of hearing voices had negative impacts on parents abilities to provide protection, reciprocity, and control | High | ||
12 | Graham and King (2005) | Three themes: (1) Bedtime strategies and effectiveness (2) Maternal responsiveness (3) Understanding of the child’s experience of bedtime | Factors impacting on parenting/additional findings: – Mothers demonstrated a poor understanding of their child's bedtime anxiety – Parents described difficulty being effective with bedtime strategies and attributed it to medication-induced fatigue (reduced responsiveness and difficulty waking in the night) | High |
Positive Authoritative Parenting
Permissive/Inconsistent Parenting
Authoritarian Parenting
Factors Impacting on the Parenting Role and Additional Findings
Research Question 2: Are the Parenting Practices of Parents Who Experience Psychosis the Same as the Parenting Practices of Parents Without SMI?
Methodological Quality of Included Studies
Authors (year) | Screening questions | Quantitative descriptive domains | Total score (quality appraisal) | |||||
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Are there clear research questions? | Do the collected data allow to address the research questions? | Is the sampling strategy relevant to address the research question? | Is the sample representative of the target population? | Are the measurements appropriate? | Is the risk of nonresponse bias low? | Is the statistical analysis appropriate to answer the research question? | ||
Campbell et al. (2018) | Yes | Yes | Yes | Yes | No | Can’t tell | Yes | Moderate (60%) |
Campbell et al. (2012) | Yes | Yes | Yes | Yes | No | Yes | Yes | High (80%) |
Mowbray et al. (2002) | Yes | Yes | Yes | Can’t tell | Yes | Yes | Yes | High (80%) |
Zemencuk et al. (1995) | Yes | Yes | Can’t tell | Can’t tell | Yes | Yes | Yes | Moderate (60%) |
Wolfenden et al. (2022) | Yes | Yes | Yes | Yes | Yes | Can’t tell | Yes | High (80%) |
Authors (year) | Screening questions | Quantitative non-randomised | ||||||
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Are there clear research questions? | Do the collected data allow to address the research questions? | Are the participant’s representative of the target population? | Are measurements appropriate regarding both the outcome and intervention (or exposure)? | Are there complete outcome data? | Are the confounders accounted for in the design and analysis? | During the study period, is the intervention administered as intended? | ||
Sabih et al. (2023) | Yes | Yes | Yes | Yes | Yes | Yes | Yes | High (100%) |
Rabha et al. (2021) | Yes | Yes | Can’t tell | Yes | Yes | Yes | Yes | High (80%) |
Gregg et al. (2021) | Yes | Yes | Can’t tell | Yes | Yes | No | Yes | Moderate (60%) |
Shenoy et al. (2019) | Yes | Yes | Can’t tell | Yes | Yes | Yes | Yes | High (80%) |
Authors (year) | Screening questions | Qualitative domains | Quality appraisal | |||||
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Are there clear research questions? | Do the collected data allow to address the research questions? | Is the qualitative approach appropriate to answer the research question? | Are the qualitative data collection methods adequate to address the research question? | Are the findings adequately derived from the data? | Is the interpretation of results sufficiently substantiated by data? | Is there coherence between qualitative data sources, collection, analysis and interpretation? | ||
Boström and Strand (2021) | Yes | Yes | Yes | Yes | Yes | Yes | Yes | High (100%) |
Strand et al. (2020) | Yes | Yes | Yes | Yes | Yes | Yes | Yes | High (100%) |
Graham and King (2005) | Yes | Yes | Yes | Yes | Yes | Yes | Yes | High (100%) |